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What is Hypertrophic Olivary Degeneration?
You’ve been diagnosed with hypertrophic olivary degeneration. Now what? Well, first things first, you probably want to practice saying this out loud a few dozen times to get it right. Let me tell you, it’s a mouthful. It’s fate’s funny little joke. Give a rare brain disease a ridiculous name that almost no one can…
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Living With HOD Doesn’t Need To Be Devastating
Receiving a rare disease diagnosis can be devastating. HOD comes with a wide array of symptoms and varying degrees of severity. Some of us have lost the ability to walk and talk. Some have very few symptoms. None of us really know what the future holds or what to expect. The only medical guidance we…
