Blog Posts

  • Research Threatened: Changes to Medicaid and Medicare Data Access

    Researchers heavily rely on Medicaid and Medicare data to understand the experiences of individuals with autism and other developmental disabilities. However, a new proposal from the Centers for Medicare & Medicaid Services (CMS) threatens to limit access to this crucial information for research. The proposed changes include requiring all access to go through CMS’s cloud-based…

  • Grocery Shopping with HOD: A Survival Guide

    Grocery shopping can be difficult for anyone, but especially for those with HOD and other disabilities. In fact, it can seem so overwhelming and impossible that you may want to skip it altogether. And to be clear, it is absolutely OK to do that! But what if you don’t have a care partner or neighbor…

  • Redefining Success: A Journey Beyond Conventional Measures

    Success has always been a driving force in my life. My parents may absolutely beg to differ with this statement. However, they don’t get access to my thoughts, feelings, and soul. They know what they perceive, but that is generally very different from my truth. Therefore, I am only speaking from my own conscience. I started school a year before…

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