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Sacrifices to HOD: Helen Regenbogen’s Story
Helen Busuttil Regenbogen was diagnosed with Hypertrophic Olivary Degeneration (HOD) in 2019. The night before a routine bladder cancer checkup she felt very unwell, she had trouble walking and was stuck in her bed. At the checkup, her doctor ran a chest X-ray which determined she had aspiration pneumonia. She was then admitted to the…
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HOD’s Official Greeter, Brad Asher: A Survivor’s Story
By: Brad Asher 12/2021 In mid April 2017 there was a giant non cancerous tumor found in my left brain on an MRI. I came home 15 weeks later. On May 1 & 2, 2017 I underwent 22 hours of surgery to remove a baseball sized tumor from my brainstem. The non malignant tumor (Meningioma) was growing…
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From “Normal” to “Rare”: Christina Coates’ Story.
My journey with brain disease begins in 2017. I began having daily migraines that were so painful I couldn’t manage life anymore. I would still push myself and go to work every single day, even though I was in excruciating pain. When I was having migraines, they were always in the back of my head…
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