Blog Posts

From “Normal” to “Rare”: Christina Coates’ Story.

My journey with brain disease begins in 2017. I began having daily migraines that were so painful I couldn’t manage life anymore. I would still push myself and go to work every single day, even though I was in excruciating pain. When I was having migraines, they were always in the back of my head…
Living With HOD

HOD comes with a wide array of symptoms and varying degrees of severity. Some of us have lost the ability to walk and talk. Some have very few symptoms. None of us really know what the future holds or what to expect. The only medical guidance we get is symptom management. There are currently no…

HODA