An interview with Erin Loughran
Visit Erin’s instagram @myinvisiblebff for more and to keep up with her life updates
Patient story : Erin Loughran
8 responses to “Patient story : Erin Loughran”
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Erin, Thank you so much for sharing your story. I don’t even give my muscle movements and conversation abilities a thought to not be there for me, and you work very hard every day to make it work. You are on my mind and I hope I can come and visit you soon. Love, Nadi
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Thank you, Nadi. It is challenging!
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I have just found this site. My husband now 86 has been living with HOD dx for 23 years. He was a very successful General Practioner with surgical residency, he had to stop working in 2000. We were unable to find resources then and actually found the diagnosis our selves after hours of research, carried it to the medical center, they seemed to have adopted it. We were not offered many if any options….maybe because of lack of knowledge. He experienced no brain event that we are aware of, symptoms developed over time….wheel chair bound now with all the complications of immobility for over 20 years. Unilateral, although now the other side is not good either….have gone throught all the symptoms with mobility, speech, swallowing, heart problems,etc. Wondering if anyone else has lived this long with HOD….
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Hi, Carol!
There is an HOD support group on Facebook. Please come and join us! If you are not on Facebook and don’t want to join, email us at ContactUs@hodassoc.org.
Best,
The HODA Team
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Erin
Thank you for sharing your story. It is so important for all of us to be aware of the challenges people with different neurological diagnoses face on a daily basis. Your bravery is an inspiration for all.
Nancy Dusing
(Highschool friend of your mom)-
Thanks, Nancy!
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Erin – you are a Super Hero! Great interview. You will forever be an awesome teacher, even if your subject changes.
Prayers for all of you – was that Katie Couric interviewing you? Great voice!Jan
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Wow so nice of you to say! Thanks, Jan.
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