Blog Posts

  • How Do You Know When it is Time?

    We have been talking a lot about the “D” word this week at my house, and I don’t mean the fun “d” word that can be substituted for the eggplant emoji. We have been trying to decide at what point HOD will disable me and force me in to early retirement. You see, I have…

  • Thoughts On How My Two Rare Neurological Diseases Have Coopted My Mental Health

    By: Christina Coates The sheer number of Podcasts that I am subscribed to is mind-boggling.  One would rightfully wonder where I find the time to listen to each episode.  Everything from Fresh Air to Two Disabled Dudes to This Week in Neuroscience.  I didn’t consider that a Neurology Podcast would remind me that my Rare Disease is always there, even when…

  • The Hidden Costs of Brain Disease Diagnosis

    By: Christina Coates Many of us arrive at an HOD diagnosis by the usual ways. It could be from a meningioma, a glioma, a cavernous malformation, a stroke, a brain bleed, or some sort of trauma to your brain. There are some of us who just happened to wake up one day with no balance,…

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