Rare Disease Community
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Research Threatened: Changes to Medicaid and Medicare Data Access
Researchers heavily rely on Medicaid and Medicare data to understand the experiences of individuals with…
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Rediscovering Life After an HOD Diagnosis Transformation
I was a completely different person before my HOD diagnosis. Let’s call it pre-HOD diagnosis transformation.…
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The Power of Patient Support Groups
By Christina Coates, HODA Board President The advent of social media has been both a…
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What is Disability Porn and Why Do People Love it?
Written by Christina Coates, HODA Board President I am new to the disability community. I am…
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Pick a Rest Day or Your Body Will Pick it For You
By Christina Coates, HODA President I knew it was coming. Oftentimes, I like to fool myself…
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Self Reflection is an Important Part of Disability
By Chris Coates, HODA Founder and Board President I have been gainfully employed since I…
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Building Community Isn’t a One-Man Job
By Chris Coates, HODA Founder and Board President I have some things that weigh on…
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Who Else is Sick and Tired of All This Advocacy?
By Chris Coates, HOD Founder and Board President Are you getting ready to mute me…
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Happy Birthday To Us All
By Chris Coates, HOD Founder and Board President I recently celebrated my 46th birthday. A lot…
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We Went to the Global Genes Patient Advocacy Summit and Came Away With Your Homework
By Chris Coates, HOD Founder and Board President I spent the last few days in…
